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Home monitoring and self-management for adult patients with cystic fibrosis during the novel coronavirus pandemic: a service evaluation in a specialist cystic fibrosis unit

Ann Banks, Joanna Saunders, Lisa Johnson, Josie Cunningham, Alexandra Higton, Christopher Orchard

DOI: https://doi.org/10.56792/AEVL7853

Ann BanksCystic Fibrosis Unit, Frimley Park Hospital Surrey, U.K, ann.banks2@nhs.net,

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Objectives

To determine acceptability and usefulness of home monitoring of weight and spirometry and a personalised action plan (PAP) in adults with cystic fibrosis (CF) and explore the effect on lung function and healthcare utilisation for four months during the COVID-19 pandemic.

Design

Service evaluation.

Setting

A U.K. based specialist adult CF unit.

Participants

Sixteen adult CF patients who had over 28 days of intravenous antibiotics in the preceding 12 months.

Interventions

Patients completed weekly readings at home of weight and spirometry on a NuvoAir spirometer and received a personalised action plan (PAP) that advised actions if their weight or lung function reduced.

Main outcome measures

Adherence to home monitoring, patient satisfaction, lung function, courses of intravenous (IV) and oral antibiotics.

Results

All patients found the home monitoring beneficial. Adherence to weekly monitoring was 38%. Fewer patients received IV antibiotics (8 versus 10) although the duration of IV antibiotics increased from 14.3 to 14.6 days. The number of patients requiring oral antibiotics also reduced (16 versus 10). The number of courses also halved from 1.6 to 0.8. Of the patients who received their action plan 75% found it useful and half of them used it to make changes to their treatments. There was no change in lung function.

Conclusions

Introduction of home monitoring and self-management was well received by patients. Antibiotic usage reduced without having a detrimental effect on lung function suggesting that the introduction of the home monitoring service potentially helped counter act the detrimental effects of a reduction in face-to-face clinic appointments due to the pandemic.

 



2022 Journal (Vol. 54 Issue 3)
Journal of the Association of Chartered Physiotherapists in Respiratory Care. Volume 54. Issue 3. 2022. Article on: p62-72
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